January First by Michael Schofield
Hardie Grant, 2013. ISBN 9781742705033. pbk., 332pp
Every now and then I picked up a book which so absorbs me I read it
almost without pause. January First was one of these. While
it is subtitled A child's descent into madness and her father's
struggle to save her, it is so much more than that. I first
became aware of January (or Jani as she insists on) through the
wonder of daytime television, and when I discovered her father had
written a book I couldn't wait to get it.
From birth, Jani is a challenging child. She never slept for more
than 20-30 minutes at a time and then only if her parents, Michael
and Susan, spent the day stimulating her and taking her to places to
tire her out. By the time she was one she was speaking in complete
sentences, by the time she is two she is asking about negative
numbers. She has a number of imaginary friends, particularly a cat
called 400 and seven rats named Monday, Tuesday, Wednesday,
Thursday, Friday, Saturday and Sunday, and they all live on
Calalini. Convinced she is a genius, her parents are finally able to
get an IQ test done which shows that it is 146 - not quite as high
as they were expecting but given her age, still significant. At the
same time Jani is showing very different behaviours from that
expected of a toddler, and she is quite antisocial. Her parents put
this down to the disconnect between her chronological age and her
mental capabilities and her father is determined to protect her
potential often clashing with his wife who wants her to socialise in
the way that regular pre-schoolers do. It becomes a cause of
friction between them, and in some ways, blinkers Michael's
approach.
Only when her brother Bohdi is born and Jani is so violent towards
him from the day they bring him home that neither child can be left
on their own, do alarm bells start to ring and Michael and Susan
begin to search for answers. Jani is assessed by psychologists and
psychiatrists, hospitalised, medicated at levels which would turn an
adult to a zombie, yet her behaviour scarcely changes. Nothing can
stop Jani obeying Wednesday's commands to hit Bohdi, and even though
Michael and Susan put themselves in harm's way to protect him,
nothing will distract her until she has carried out what needs to be
done.
January First is Michael's story of his daughter's life, the
battles he took on, the mistakes he made, his roller-coaster
relationship with Susan as both seek to give Jani a stable, if not
ordinary, life and a safe haven for Bohdi. It is a story of
frustration, despair, hope and faith.
But it is also the story of a society that still sees mental illness
as a stigma rather than accepting a broken brain in the way it
accepts a broken leg. It is a story of a society where there appears
to be little support for parents of mentally ill children so there
only respite is when the child is in school in a situation never
designed to cater for such extreme needs or when she is hospitalised
in circumstances that make your jaw drop at the lack of empathy and
care. It is a story of a system that is not geared to cater for and
manage mental illness in children. It is a story of a system where
health care is dependent on your ability to pay and the health
insurer's willingness to do so, so that as well as battling the
illness, you also have to battle bureaucracy. It is a story that
will break your heart and make you want to fight for the rights of
Jani and others like her.
When I was at teachers college as a young mum, we had to visit a
local hospital where severely physically and mentally disabled
children lived and I gave thanks that my newborn son was so healthy.
As a grandparent, I give thanks that my little people are not Jani.
As a teacher, I gained great insight into what it must be like for
parents living with a child with a mental illness. Jani's story puts
things into perspective. There's a saying that there is always
someone worse off than you, but in this case, it would be hard to
know what that would be particularly as it now seems that Bohdi is
following Jani's path
I thank Michael Schofield for writing it - there is so much we can
learn from his baring his soul in this way. I hope he and Susan
continue to have the courage and strength and love that shine
through this book on every page, and that the rest of us listen and
do what we can to make life better for parents and children in this
situation.
This book is an absolute must-read - just ensure that you give
yourself a long, interrupted time to do so, and give every child in
your life a warmer smile today.
Barbara Braxton